Exploring the psychological effects of endometriosis : a qualitative study

Abstract

Endometriosis is a pervasive, widespread disease that affects millions of women worldwide. The number of women affected by endometriosis is increasing at a staggering rate. Endometriosis impacts women in a variety of ways; it often gradually strips away their resistance to pain, their emotional strength, their concept of femininity and their ability to cope with challenges. This study aimed to provide a voice for women diagnosed with endometriosis. The study allowed the participants to share their experiences from diagnosis through to treatment and to explain the ways in which endometriosis influences their daily lives. In this research report the psychological impact of this disease is discussed, and factors that are not currently addressed by medical professionals treating women with endometriosis are highlighted. Social constructionism provided the theoretical framework for the study. One-on-one, in-depth interviews were conducted with five women who have been diagnosed with endometriosis by a gynaecologist through means of laparoscopic surgery. The method of analysis involved thematic network analysis. The participants’ narratives were converted into interview transcripts. These transcripts were analysed by the researchers and themes were identified. Themes that repeated were elaborated and were linked to available literature. The researcher hopes that this dissertation will contribute to existing knowledge regarding the psychological effects of endometriosis. It is hoped that it will help both the medical community and future and existing patients understand this disease and the effect that it has on the lives of women around the world, but particularly the lives of women in South Africa.