The lived experiences of women suffering from multiple sclerosis

Abstract

The study investigated the lived experiences of women suffering from Multiple Sclerosis in Johannesburg and the East Rand. The study aimed at describing how these experiences affect their lives, and how these women cope after being diagnosed. A qualitative approach was utilised following an exploratory, descriptive, phenomenological, contextual research design. An in-depth literature study was conducted for information used as a basis for the study. Data collection included semi-structured interviews and a focus group. Data-analysis revealed a lack of understanding for the emotional, physical and social problems encountered. Recommendations proposed that the community be sensitised to the reality of MS and disabled persons, and that comprehensive support structures be put in place to attend to the needs of women suffering from Multiple Sclerosis.