Exploring the lived experiences of adolescents living with vertically acquired HIV

Abstract

This qualitative study explored the lived experiences of adolescents living with vertically acquired HIV receiving treatment, care and support services at Dora Nginza Wellness clinic, in Port Elizabeth, South Africa. Six adolescents living with vertically acquired HIV (four females and two males) between the ages of 16-17 years participated in in-depth semi-structured open-ended individual interviews. Tesch’s (1990) method of data analysis for qualitative research was used to analyse the interviews. Adolescents that participated in the study spoke widely about the outlook on their illness and their lives both in the past and present. They depicted fear, anxiety, pain and sadness in their lived experiences. They were anxious about their own death and had experienced illness and death of parents, siblings and close relatives due to HIV and AIDS. They described painful and traumatic life events related to their illness which included knowing their own HIV status and severe health problems and hospitalisations. They all learnt about their HIV status in early adolescence and choose not to disclose their status to people outside the family due to fear of rejection, stigma and discrimination. Taking ARVs was challenging to the participants due to side effects and strict medication schedules. Their school attendance and performance was affected by their illness. Family was an important resource of support. The participants had good experiences of HIV treatment at the Wellness clinic. The findings suggest that adolescents living with vertically acquired HIV faced a number of challenges in dealing with their disease and its treatment. They need intensive care and support services that enhance their positive self, facilitate self-disclosure and decrease and discourage stigma and discrimination at school and within their communities.