Living with the label of dyslexia

Abstract

Included in the challenges possibly faced by those with dyslexia, is the acquisition of literacy skills. Despite 21st century advancements made in technology, literacy skills remain central to education and day-to-day living. Therefore, it is essential to meet the learning needs of those with dyslexia, as failure herein could impact negatively on their lived experiences and on the attainment of their needs. The main aim of this transcendental phenomenological study was to explore, and describe the first-hand lifelong experiences of adults living with dyslexia. The study utilised the theoretical and conceptual frameworks of Bronfenbrenner’s Ecological Systems Theory and Maslow’s Hierarchy of Needs. Following a multistage procedure, a criterion-based sampling strategy was used to select study participants, comprising of eight South African adults between the ages of 18 and 40, who were formally diagnosed with dyslexia. Data collection included semi-structured one-on-one in-depth interviews and the researcher’s reflective journal. Data analysis, following the principles of phenomenology, resulted in the formation of five themes. Findings reveal that dyslexia is viewed positively by adults diagnosed with it, and used as a driving force to succeed and obtain set goals. Various professionals were consulted with the aim of obtaining a diagnosis; however, obtaining a diagnosis and hence an explanation for their learning challenges, was a stressful experience for both the participants and their parents. Families provide much assistance with school work, although all participants revealed negative schooling experiences caused by schools not acknowledging dyslexia and not meeting their specific learning needs. Although living with dyslexia presents challenges, coping mechanisms are in place for overcoming anticipated challenges. Whilst self-confidence is not negatively affected, dyslexia appears to negatively affect the self-esteem of some. This study found that the dyslexia label is preferred to that of having additional learning needs, as the dyslexia label is viewed as referring to specific challenges and not to entire learning abilities. Finally, this study hopes to provide a deeper understanding of the experiences of those living with dyslexia and fill the existing gap in South African literature.